In the beginning of 2018, the Arsene partners made the decision to set up the Arsene Foundation which supports projects of general interest for children and young people in difficulty, particularly in the areas of education, health, professional integration or business development.
One of the projects supported by the Arsene Foundation is the Barth Syndrome Foundation (https://www.barthsyndrome.org/). Barth syndrome is a serious X-linked genetic disorder, primarily affecting men. One of the goals of the Foundation is to raise awareness around this illness. Only 4 countries in the word can really develop R&D programs relating to this very serious syndrome. The Barth Syndrome Foundation needs support in terms of communication to improve international awareness and fund-raising to finance ambitious R&D programs.
Arsene Taxand has been willing to take the opportunity of the annual Taxand conference to bring an additional support to Barth by running all together 6 kms on Friday May 17 in the morning, at 7.30am for the benefit of Barth (precise time and meeting point to be confirmed). The running session will start from the Parc Monceau (3 minutes walking distance from the hotel).
“#WerunwithBarth#” will be the symbol of our support.
To support them, you can join the running session and buy here T-shirts at the minimum price of 30 euros (any additional contribution will be very welcome!). Members of the Foundation will be present at the running session and the evening before at Longchamp.
Everybody is welcome. We are expecting 100 runners. A group picture will be taken just before the start.
Après votre don, l'organisme vous fera parvenir un reçu fiscal. Si vous êtes imposable, il vous permettra de bénéficier d'une réduction d'impôts de 66% du montant de votre don.